There are many ways for members, their friends and family to become involved in the Association. Here are a few:
Join one of the Association’s working groups – Research; Fundraising; Communications – these groups work under the direction of the Board.
Newsletter Editorial – we need people to help put our e-news bulletin together.
Public Relations – we need people who have the skills and contacts dealing with the press.
Website Editorial – we need people to help update and proofread our website.
Attend meetings on behalf of the Association – the Association is represented at many meetings all over the UK and Europe and we welcome members to attend these meetings to represent Gaucher patients and their families.
Support new patients and their families – the Association receives calls and e-mails from newly diagnosed patients who are seeking support and advice, we like to be able to refer them to members who have been through the same experience and/or are of similar age. We are always looking for new members to help with this.
Fundraising activities – the Association is supported solely from donations from members, their friends and families and independent funding sources. See our Fundraising page for ideas on fundraising events and request a fundraising packs.
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Become a member
We welcome patients and their friends and families from both the UK and overseas
Join the board
We are always looking for new people to join and support our Board
Other ways to support us
There are lots of ways to support us, from taking on a challenge to recycling your inkjet cartridges
Donate now
The Gauchers Association is funded solely by member subscriptions and voluntary donations